Oh. I guess by now you are wondering what could be wrong with me and my kidneys? I haven't mentioned that yet. Or have i?
I have Systemic Lupus Ereythemotosus...it is an autoimmune disease where my body attacks itself. In my case it is my kidneys. I also have a blood disorder, antiphospholipid syndrome.
See http://en.wikipedia.org/wiki/Lupus_erythematosus and http://en.wikipedia.org/wiki/Antiphospholipid_syndrome for more information.
I have been diagnosed with this condition since 1996 but have probably had it longer than that. It results in weird symptoms. I have had a minor stroke from the blood condition and a retinal occlusion. I have been in hospital over 14 times. It seems we just can't get the lupus to stop attacking so now it has nearly destroyed my kidney function.
I am down to less than 10% now hence the preparation for dialysis. Eventually I will have a transplant, we are unsure if the new kidney will also be attacked by lupus. At the moment there is no cure for Lupus but people are working on it.
Good morning ... My name is Wick Davis and I'm with the Lupus Foundation of America. I came across your blog and wanted to reach out to you. I'm currently trying to find all the bloggers out there who have lupus. I am hoping that we might be able to assist one another. I would love to hear from you. Please feel free to contact me at davis@lupus.org. I hope to hear from you. Wick
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